2025
“Genomics England commissioned a four-month project from Clear and Concise Health to help us consider options for how we could better engage with patient advocacy groups in future based on our new ten-year strategic direction. The recommendations were informed by in-depth interviews with senior leaders from patient advocacy groups with expertise in rare conditions, cancer, population health and diverse data, and based on a strong understanding of how to build and maintain relationships with patient groups of all shapes and sizes. The recommendations were also shaped by conversations with potential partners from across the genomics ecosystem to identify areas of shared priority and explore opportunities to work together. We were delighted with the outcome of the project which brought robust evidence from patient advocacy groups and potential partners together with thoughtful analysis of what this might mean for our future approach to strategic engagement.”
Anne-Marie Hamilton, Engagement and Public Partnerships Director, Genomics England